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What is EDS/HSD? 

Ehlers Danlos Syndrome (EDS) or the Hypermobility Spectrum Disorders (HSD) are a group of inherited connective tissue disorders that affect collagen in the body. Collagen is kind of like your body’s glue -it is what holds your skin, joints, blood vessels, and other major organs in place. 

The symptoms of EDS/HSD can be very widespread as collagen is involved in every aspect of the human body, meaning that almost every organ can be affected to a lesser or greater extent.

EDS is currently considered to be a rare disease as it affects approximately 1 in 5000 people world wide (however, due to it’s vast underdiagnosis, a presumed frequency of 1 in 200 has been proposed).

See Ehlers-Danlos Support UK  or the HMSA for further information.