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What is Postural Orthostatic Tachycardia Syndrome? 

Postural Orthostatic Tachycardia Syndrome (POTS), a form of dysautonomia, is a condition in which a change from lying to sitting or standing causes an abnormally large increase in heart rate.

This leads to symptoms such as:

  • Lightheadedness, shortness of breath and fainting

  • Reduced blood flow to brain

  • Blood pooling in the legs

  • Brain fog (cognitive and speech difficulty)

  • Blurred Vision

  • Altered sleep phases

  • Irritable Bowel

  • Chronic Headaches

  • Chronic Fatigue

  • Vomiting and nausea

  • Neuropathy

  • Poor Temperature Regulation

POTS is a common condition among those suffering with EDS/HSD. In Erin's case, it is thought that her brainstem compression is causing her severe POTS, and that her craniocervical fusion will improve this drastically.